Facciamo diventare la ricerca di una CURA per i mielolesi CRONICI una priorità ! Buon 2013 dalle Cure Girls!

Happy 2013 from The Cure GirlsCURA: Il termine “cura” significa che, dopo il trattamento medico, il paziente non presenta più quella particolare patologia.

Lesione Spinale CRONICA: Dopo solo pochi mesi tutte le lesioni sono considerate croniche (mentre quando accade il danno e nelle poche settimane/mesi seguenti è considerata acuta).

Focalizzare l’attenzione sulla ricerca che possa aiutare a CURARE LA LESIONE SPINALE CRONICA dovrebbe pertanto essere considerata una priorità.

FACCIAMOLO ACCADERE NEL 2013!

Felice Anno Nuovo dalle Cure Girls!

Research for a CURE for CHRONIC Spinal Cord Injury is our priority. Make it happen! HAPPY 2013 from the Cure Girls!

Happy 2013 from The Cure Girls

CURE: The term “cure” means that, after medical treatment, the patient no longer has that particular condition anymore.

CHRONIC spinal cord injury: After only a few months ALL injuries are considered chronic (when injury happens and in the very few weeks/months after it is considered acute). 

A focus on research that can help to Cure Chronic Spinal Cord Injury should therefore be considered a priority.

Make it happen in 2013!

Happy New Year from the Cure Girls!

Merry Christmas! Buon Natale!

Merry Christmas from the Cure Girls! - Le Cure Girls vi augurano Buon Natale!

Merry Christmas from the Cure Girls! – Le Cure Girls vi augurano Buon Natale!

LETTERS TO SANTA FROM THE CURE GIRLS

LETTERS TO SANTA FROM THE CURE GIRLS

Dear Santa,

We have been extra good this year, please try to bring us a

CURE FOR A CHRONIC SPINAL CORD INJURY 😉

MERRY CHRISTMAS AND HAPPY NEW YEAR!

CURE GIRLS

Letter to Santa from cure girl Arcangela

LETTER TO SANTA FROM CURE GIRL ARCANGELA:

https://curegirls.wordpress.com/?attachment_id=633

Letter to Santa from cure girl Lolly

LETTER TO SANTA FROM CURE GIRL LOLLY:

https://curegirls.wordpress.com/?attachment_id=632

Letter to Santa from cure girl Loredana

LETTER TO SANTA FROM CURE GIRL LOREDANA:

https://curegirls.wordpress.com/?attachment_id=631

Letter to Santa from Cure Girl Rebecca

LETTER TO SANTA FROM CURE GIRL REBECCA:

https://curegirls.wordpress.com/?attachment_id=634

Letter to Santa from Cure Girl Ruth

LETTER TO SANTA FROM CURE GIRL RUTH:

https://curegirls.wordpress.com/?attachment_id=663

Letter to Santa from Cure Girl Marina

LETTER TO SANTA FROM CURE GIRL MARINA

https://curegirls.wordpress.com/?attachment_id=672

Merry Christmas!

orso

 

LE CURE GIRLS SCRIVONO A BABBO NATALE

LETTERS TO SANTA FROM CURE GIRLS

LETTERS TO SANTA FROM CURE GIRLS

Caro Babbo Natale,

Noi siamo state estremamente buone quest’anno, quindi per favore cerca di portarci una CURA PER LA LESIONE SPINALE CRONICA 😉

BUON NATALE E FELICE ANNO NUOVO!

CURE GIRLS 

Letterina della Cure Girl Arcangela a Babbo Natale

LETTERA  A BABBO NATALE DELLA CURE GIRL ARCANGELA:

https://curegirls.wordpress.com/?attachment_id=653

Letterina della Cure Girl Lolly a Babbo Natale

LETTERA A BABBO NATALE DELLA CURE GIRL LOLLY:

https://curegirls.wordpress.com/?attachment_id=654

Letterina della Cure Girl Loredana a Babbo Natale

LETTERA A BABBO NATALE  DELLA CURE GIRL LOREDANA: 

https://curegirls.wordpress.com/?attachment_id=657

Lettera della Cure Girl Marina a Babbo Natale

LETTERA DELLA CURE GIRL MARINA A BABBO NATALE

https://curegirls.wordpress.com/?attachment_id=674

Letterina della Cure Girl Rebecca a Babbo Natale

LETTERA A BABBO NATALE DELLA CURE GIRL REBECCA:

https://curegirls.wordpress.com/?attachment_id=655

Lettera della Cure Girl Ruth a Babbo Natale

LETTERA DELLA CURE GIRL RUTH A BABBO NATALE:

https://curegirls.wordpress.com/?attachment_id=668

BUON NATALE A TUTTI!

orso

Ruth Purves: A Cure Girl Warrior

FREEDOM

Freedom to move is one of our most basic human rights – La libertà di muoversi è uno dei principali e basilari diritti umani

Hello, I’m Ruth and I’m most definitely a Cure Girl, not a ‘Push Girl’.  In 2009, I brokeRUTH my neck in an accident and have been paralysed from the chest down since. I cannot balance as I have no trunk muscles and have no use of my hands or fingers. I am dependent on others for almost all aspects of my survival.

Prior to my accident, I was working in Afghanistan as a humanitarian aid worker.  I have a master’s degree in Disaster Management and have worked in conflict and disaster zones all over the world. My career was demanding, challenging and occasionally rewarding.

Ruth in AfghanistanWhen not working, I enjoyed travelling and exploring new cultures. I was and still am a positive and energetic person. However, living trapped in a body that doesn’t work is incredibly frustrating and sad.

Like everyone else who becomes paralysed, I did not choose this life.  The only choice I have left is a simple one: choose to accept being paralysed or choose to do something about it. I’m choosing to do something about it.

We are at an exciting point in human history where regenerative medicine is about to become a reality. Pre-clinical research and clinical trials and are taking place like never before. However, to ensure that chronic spinal cord injury becomes curable, there’s still a lot to do. The more people who come forward to support a cure, the better. We need a collective voice saying loud and clear that paralysis is not acceptable.

Freedom to move is one of our most basic human rights and to be paralysed is to be alienated from one’s most fundamental sense of self.

Together with a dedicated team of international cure advocates, I campaign for a cure for chronic SCI. We support and question scientists, lobby organisations and ensure that chronic SCI is always on the agenda. I also organise local fundraising initiatives to support clinical trials that are already underway.

As well as campaigning for a cure, I also undertake an intensive exercise regime toRuth exercising ensure that when a cure therapy becomes available, my body is ready. It’s an unrewarding task and it consumes most of my energy but I’m determined to recover and believe that a healthy body will be easier to cure.

I want my life back.  I want to be well; to be free; to move.  I’m not a Push Girl; I’m a Cure Girl Warrior.

 Ruth Purves

Ruth Purves: Una Cure Girl Guerriera!

FREEDOM

Freedom to move is one of our most basic human rights – La libertà di muoversi è uno dei principali e basilari diritti umani

Ciao, mi chiamo Ruth e sono sicuramente una Cure Girl, non una Push Girl. Nel 2009, mi sono rotta il collo in un incidente e sono rimasta paralizzata dal torace inRUTH giù. Ho perso la capacità di tenermi in equilibrio perché non controllo i muscoli del tronco e ho anche perso l’uso delle mani e delle dita. Sono dipendente dagli altri per quasi tutti gli aspetti della mia sopravvivenza.

Prima del mio incidente, ho lavorato in Afghanistan come operatore umanitario. Ho conseguito un master in gestione delle catastrofi e ho lavorato nelle zone di conflitto di tutto il mondo. La mia carriera è stata impegnativa, stimolante e di tanto in tanto anche gratificante.

Ruth in Afghanistan

Quando non lavoravo, mi piaceva viaggiare e conoscere nuove culture. Io ero e sono ancora una persona positiva ed energica. Tuttavia, vivere intrappolata in un corpo che non funziona è incredibilmente frustrante e triste.

Come tutti gli altri, che hanno subito una paralisi, non ho scelto questa vita. L’unica possibilità di scelta che mi è rimasta da prendere è semplicemente quella di accettare di essere paralizzata o scegliere invece di fare qualcosa a riguardo. Ho scelto di fare qualcosa a riguardo.

Siamo ad un punto interessante della storia umana in cui la medicina rigenerativa sta per diventare una realtà. Ricerca pre-clinica e studi clinici sono in corso come mai successo prima. Tuttavia, per garantire che la lesione del midollo spinale cronica diventi curabile, c’è ancora molto da fare. Più persone si fanno avanti per sostenere una cura, meglio è. Abbiamo bisogno di una voce collettiva per dire forte e chiaro che la paralisi non è accettabile.

La libertà di muoversi è uno dei principali e basilari diritti umani e l’essere paralizzato significa perdere una parte importantissima della propria identità.

Insieme a un team internazionale di attivisti, sostengo una campagna per la cura della lesione spinale cronica. Noi supportiamo i ricercatori e le organizzazioni per garantire che l’attenzione sulla lesione cronica sia sempre all’ordine del giorno. Ho anche organizzato iniziative locali di raccolta fondi per sostenere studi clinici che sono già in corso.

Inoltre, seguo un regime di fisioterapia intensivo Ruth exercisingcon lo scopo di garantirmi un corpo “pronto” per quando sarà disponibile una cura. E’ un compito ingrato e consuma la maggior parte delle mie energie, ma sono determinata perché credo che un corpo “sano” sarà più facile da curare.

Voglio indietro la mia vita. Voglio stare bene, essere libera di muovermi. Io non sono una Push Girl; Io sono una Cure Girl Guerriera!

Ruth Purves

Marina Romoli: I Want To Ride My Bike Again

Marina: I want to ride my bike again!Hello, my name is Marina. Since childhood I have always loved sports and bikes. I was been a professional Marina: I'm a cure girl!cyclist for 4 years but on June 1st,2010 in a split second I lost everything.  I was hit by a car while training on the road. That caused me a spinal cord injury and a severe facial trauma. This accident left me paraplegic and several plastic surgeries have been necessary to repair my facial trauma. I never stopped hoping in a cure that can restore me as I was before. Everyday I undertake an intensive exercise regime but unfortunately, this alone does not cure spinal cord injury.marina romoli onlus

I think that only hope for us is to support medical research to find a cure for Chronic Spinal Cord injury. For that goal I have created a non-profit organization called Marina Romoli Onlus that aims to raise funds for chronic spinal cord injury research.

In my future I don’t see myself sitting in a wheelchair, we must be confident that the science will give us the solution!

The only way for us to get back to a really independent life is a cure for chronic spinal cord injury ! For this I am proud to be a Cure Girl!

Marina Romoli

Marina spoke about her story in an interview on Italian television (Dribbling Rai 2) on December 1st, 2012

http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-d3b59f50-1361-4652-bfd8-64e1a0b9f202-raisport.html#set=ContentSet-75a7372f-276f-4869-8482-e07311948513&page=0

Marina Romoli: Voglio Correre Con la MIA BICI di Nuovo

Marina: I want to ride my bike again!Ciao a tutti,

Mi chiamo Marina e fin da piccola ho sempre amato lo sport e la bicicletta sopra ogni cosa.

Marina: I'm a cure girl!Ero una ciclista professionista ormai da 4 anni quando, il 1 giugno 2010, un tragico incidente  mi ha portato via tutto. Un auto mi ha tagliato la strada mentre mi allenavo. Ho subito un gravissimo trauma alla colonna vertebrale e uno alla parte destra del viso. Da quel giorno sono paraplegica e sono ancora costretta a sottopormi ad interventi per poter rivedere il mio viso come era prima dell’incidente. Nonostante tutto, non ho mai smesso di sperare di guarire e di poter tornare come prima. Ogni giorno mi impegno in sedute di fisioterapia per tenermi sempre in forma e migliorare, ma purtroppo la lesione spinale non si cura da sola, anzi.

Quindi ho riposto sin da subito gran parte delle mie speranze nella ricerca per unamarina romoli onlus cura creando una onlus che miri a sensibilizzare e a raccogliere fondi per la ricerca sulle lesioni spinali croniche: la Marina Romoli Onlus http://www.marinaromolionlus.org/sito/ .

Nel mio futuro non mi vedo in carrozzina, dobbiamo essere fiduciosi che la ricerca ci darà la soluzione!

L’unico modo per noi di tornare ad avere una vera vita indipendente è una cura per le lesioni spinali croniche! Per questo sono fiera di essere una Cure Girl!

Marina Romoli

Per conoscere la storia di Marina, guardate il video trasmesso sabato 1° dicembre 2012 durante la trasmissione Dribbling in onda su Rai 2. http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-d3b59f50-1361-4652-bfd8-64e1a0b9f202-raisport.html#set=ContentSet-75a7372f-276f-4869-8482-e07311948513&page=0

Lolly Mack: Skydive plans for ex-glamour model paralysed by clubber

Saturday, November 24, 2012

Skydive plans for ex-glamour model paralysed by clubber

by Syma Mohammed

A former glamour model who was left completely paralysed after a tragic accident will be skydiving for charity in March.Lolly Mack

Lorraine Mack, 38, of De Beauvoir Town, was left immobile from the neck down after a man who had taken ecstasy and alcohol fell on her head from a balcony during a night out with friends in central London in 2004.

The brave woman will be jumping from the sky to raise money for a spinal research.

[ Lolly’s Skidive for Spinal Researchhttp://www.justgiving.com/Lolly-Mack ]

She said: “I’m trying to raise as much money as possible for spinal research. There are a lot of positive things happening in terms of research and clinical trials.

“I’m very positive that in time a cure will be found. My goal is to get on my feet and get my independence back.”

Paralysis

Prior to the accident, her career was taking off and she had appeared in The Sun, News of the World, FHM magazine and MTV. She recounts the night that changed her life, saying: “We went to a nightclub and a man fell from a balcony above me.

“He was 17 stone and landed on my head. My spinal cord was compressed and that’s what caused the complete paralysis.”

She spent 10 months in hospital, but said there was a lack of support once she left hospital.

Ms Mack continued: “My main thing was to stay fit and healthy. Exercise was a big part of my life. My family all made a commitment to fight this and try everything to get me on my feet again.”

With help from her family she bought a functional electrical stimulation (FES) bike, standing frame and the power plate, which has helped transform her life. She said: “The standing frame improves circulation, bone density and breathing. The power plate is a vibrating plate and helps to improve blood circulation and massages the limbs. The FES bike works out my arms and legs and prevents muscle wastage.”

Since her accident, she has regained some movement in her arms, and some feelings in her toes through using this equipment.

She added: Now I’ve got the use of my arms, I can do things like go on Facebook. I can do my make-up.

“I can feel my toe on my right foot. They are small things but they are big improvements.”

Positive

She said a positive attitude helped get her through, saying: “I’ve never been a negative person. I look forward. I have such a good support network.

“The only positive thing that has come out of this is the number of courageous people I have met. I have a Facebook page https://www.facebook.com/Cureforsci?fref=ts with 5,000 people from around the world who have different injuries.

“I try to give them advice. Even if I’m helping one person, then that’s worth it.”

http://www.hackneygazette.co.uk

http://www.hackneygazette.co.uk/news/skydive_plans_for_ex_glamour_model_paralysed_by_clubber_1_1707510#.ULOC8be-U1I.facebook