Archivi tag: broken vertebrae

Loredana parla di Lesione Spinale a Tg2 – Costume e Società 

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Cure for SCI Must Become Possible

La Cure Girl Loredana parla in TV a Rai 2. L’intervista è andata in onda il 4 marzo 2013 nella rubrica TG2 –  “Costume e Società”.

Obiettivo: Incrementare la consapevolezza delle persone, spiegando loro che una CURA per le lesioni spinali croniche è davvero qualcosa di vitale importanza.

Clicca http://www.youtube.com/watch?v=DTYFRmTh74Q per guardare il video.

Vedi anche Loredana al TG2 del 24/02/2013: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-f259addc-88c5-4ebe-afed-014248397400-tg2.html

Happiness Is Walking Barefoot Through Grass

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We Want to Walk Again

“HAPPINES IS WALKING BAREFOOT THROUGH GRASS”.

Happiness Is Walking Barefoot Through Grass

Charlie Brown, in Charles M. Schulz, Peanuts, 1950 

 

La felicità è camminare a piedi nudi nell’erba

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We Want to Walk Again

“LA FELICITA’, È PASSEGGIARE SULL’ERBA A PIEDI NUDI”.

Happiness Is Walking Barefoot Through Grass

Charlie Brown, in Charles M. Schulz, Peanuts, 1950 

 

LA FELICITA’ E’ TENERE TRA LE TUE MANI UNA TAZZA DI LATTE CALDO

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HAPPINESS IS HOLD IN YOUR HANDS A CUP OF HOT MILK

Barbara BucciMi chiamo Barbara, ho 36 anni e sono tetraplegica dal 1987, quando, in seguito ad una caduta dall’altalena, ho subito una lesione cervicale del midollo spinale che mi ha compromesso l’uso totale dei quattro arti. Mi ritengo una “Cure Girl” perché desidero con tutto il cuore che si trovi presto una cura per tutti i tipi di lesione spinale e per tutti i livelli. Ma, in modo particolare, per tutte quelle lesioni che comportano la perdita totale e/o parziale dell’autonomia nel gestire la propria persona.

La gravità della mia lesione e il suo alto livello (C4-C5) ha determinato una condizione di dipendenza per lo svolgimento delle azioni necessarie al vivere quotidiano, causando grandi disagi non solo a me. Essere dipendente dagli altri è una delle cose peggiori che l’essere umano può sperimentare. Tutto questo è aggravato dal fatto che, nella maggior parte dei casi, sono i familiari a prendersi tutto il carico dell’assistenza. Perciò, solo una cura definitiva al fine di recuperare almeno tutti quei movimenti che permettono la totale autonomia è l’unica soluzione per cambiare le cose; ogni altro rimedio è solo un palliativo.

L’attenzione sulla ricerca medica per la cura delle lesioni spinali è pressoché inesistente, soprattutto in Italia; e questo accade perché inesistente è l’informazione sulle conseguenze che questo tipo di trauma comporta… come se non bastasse l’immobilità di per sé ad esigere che una cura venga trovata al più presto!

Barbara BucciGrazie ad Internet possiamo diffondere la nostra voce e far conoscere a tutti cos’è effettivamente una lesione spinale, così tutti si renderanno conto di quanto è importante tenere sempre accesi i riflettori sulla ricerca medica, come avviene per tante altre malattie invalidanti.

“La felicità è…  sentire i capelli fra le dita…  prendere in braccio un bambino… applaudire a un concerto… tenere fra le mani una tazza di latte caldo… camminare a piedi nudi sulla sabbia bagnata…

Basta poco per essere felici.”

La Vostra Cure Girl Barbara

HAPPINESS IS HOLD IN YOUR HANDS A CUP OF HOT MILK

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HAPPINESS IS HOLD IN YOUR HANDS A CUP OF HOT MILK

Barbara BucciMy name is Barbara, I’m 36 years old and I’m quadriplegic since 1987, when, following a fall from my swing, I suffered a cervical spinal cord injury that has affected me the full use of my arms and legs. I consider myself a “Cure Girl” because I wish with all my heart that a cure will be found soon for all types of spinal cord injury and for all levels. In particular, for all those injuries that cause the total and/or partial loss of autonomy in taking care of themselves.

The severity of my injury and its high level (C4-C5) resulted in a condition of dependence to perform the actions necessary to daily life, causing great inconvenience not only to me. Being dependent on others is one of the worst things that a human being can experience. All this is aggravated by the fact that, in most cases, family has to take the whole load of assistance. Therefore, only permanent cure to recover at least all those movements that allow complete autonomy is the only way to change things; every other remedy is only a palliative.

The focus on medical research to cure spinal cord injuries is very lacking, especially in Italy, and this is because there is a very little information on the consequences which this type of trauma involves… as if paralysis itself is not enough to require the need of a cure!

Barbara BucciThanks to Internet we can spread our voice and let everyone know what is actually a spinal injury, so everyone will realize how important it is to always keep the spotlight on medical research, as it occurs with many other disabilities.

“Happiness is… feel the hair through  your fingers… take a child in your arms… clapping at a concert… hold in your hands a cup of hot milk… walking barefoot on wet sand…

It does not take much to be happy.”

Our Cure Girl Barbara

Happy Valentines Day from the Cure Girls – Buon San Valentino dalle Cure Girls

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WE NEED TO FEEL THE SENSE OF TOUCH “I still feel your touch in my dreams. Forgive me my weakness, but I don’t know why. Without you it’s hard to survive.”

Cascada – Everytime We Touch (2006) http://www.youtube.com/watch?v=gWB-J0EEFac

A CURE TO BE FREE AGAIN

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A cure to be free againGoogle Trend says Google users searched for “spinal cord injury” more than ever before or after in October 2004 when Superman, Christopher Reeve, passed away due to complications from his high cervical spinal cord injury.

“It then was in October 2004 that our movement lost its most recognizable face, and our most passionate advocate for a cure. Since then, as technical traders say about a stock chart, the trend is from the “upper left to the lower right. People are searching less and less for the term “spinal cord injury”.”

This is something of a worry. And something that brings a great sadness to me and many others I’m sure. How many of us are in this world who before 2004 and since then have suffered a spinal cord injury and who are searching for a cure, hoping that soon we’ll see a way to have us all back on our feet again.

This trend is bad for all of us. We need to get out there and raise awareness that spinal cord injury doesn’t mean an end to your life. But it also doesn’t mean that you loose hope for a cure. One day this will happen and if we all keep spreading the word, talking to as many people who will listen about our cause then one day this will come.

Just a month before my own accident Christopher Reeve also had a riding accident which left him with considerably more paralysis. But he didn’t give up. He and his wife spent their life time trying to raise money for spinal research.
The cure unfortunately didn’t come soon enough for Christopher but we all need to continue to support research and find the cure for Chronic Spinal Cord Injury.

Being Cure Girls we are trying to spread awareness and show people all over the world that a cure for Chronic Spinal Cord Injury is still something vitally important. This is something we all believe in and we know will one day become reality, if we just keep on fighting. Never giving up.

Therefore when people do searches now, it should trend up and up and up to the right. Because the Cure Girls are now raising awareness and raising funds for spinal research, this is not the end, it’s the beginning. This is something new, but it is something we are building on.

“We were all born to walk not to roll”.

Cure Girl Rebecca.

Read more about it: http://www.scisucks.org/content/what-does-google-trends-tell-us-about-spinal-cord-injury

Freedom…

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Freedom to do what we want toAndremo oltre i limiti e confini liberi vedrai
faremo cose che non hai osato immaginare mai
andiamo…
Via senza più problemi andiamo
via senza regole
Godersi giorno dopo giorno
ogni momento che verrà
sarà diverso mai più tempo perso
aspettando che la vita va …

Raf  – Via  (2001) http://www.youtube.com/watch?v=Q_M4C3Sn-Zc

Crush Chronic Spinal Cord Injury!

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Crush Chronic Spinal Cord Injury!…We are crushed and created
We are melted and made
We are broken and built up, in the very same way…

Caitlyn Smith – Crushed And Created (2007) 

http://www.youtube.com/watch?v=C-322USCiCw&feature=youtu.be 

WE WANT TO FEEL THE SENSE OF TOUCH

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WE WANT TO FEEL THE SENSE OF TOUCHJust you try TYING YOUR HANDS AND LEGS UP! Now try to live just one day like this…The main consequence of spinal cord injury is permanent disability or loss of sensation and movement below the site of injury. This is our HELL!!!!

We need our hands and legs to be fully functioning again. We need this in order to regain our life back!

Cure Girls