“Love” after Spinal Cord Injury

WE WANT TO BREAK FREE

How do I feel when you’re near me, my love? My heart is beating and my mind thinks about how it would be nice to make love with you. But then what?

You move closer to me and kiss me. I wish that I could be free to move but I can’t.

While every other woman would let go, my mind screams: “Hope my bladder doesn’t leak and face embarrassment. Uhm.. I have to stop him and tell him I have to catheterize first but I should expect to undress me before?”.

It is humiliating and isn’t sexy.

Then I try to convince myself: “We’ll just have to get used to the idea if we want to stay together”.

Passion? My passion is blurred, all my mind can do is worry. I don’t feel anything…Not even a caress… I hate it that I can’t even feel my partner’s hands caressing my skin.

A Cure Girl in Love

Loredana speaks out on Italian Television.

Cure for SCI Must Become Possible

Loredana speaks out on Italian Television. She wants to raise awareness and show people that a CURE for Chronic Spinal Cord Injury is of vital importance.

English version: http://www.youtube.com/watch?v=_p1fDUk-OHo&feature=youtu.be

Introduction: When disability is not a shame. The story we show you is a strong message to society that has to deal with a problem never completely solved. By Piergiorgio Giacovazzo

Loredana:“Please don’t make a sad piece and don’t use a sad music.”

“’I’m not angry, I just feel like I want to live”.

Piergiorgio: Loredana is a woman living in Galliavola (Pavia). She was 17 when she became paraplegic  from a car accident.

L: “You miss your independent life your real life the life you were dreaming of”

P: Like Loredana, about 1500 people suffer from spinal cord injury and become paralysed every year. According to the ministry of health, there are currently 80,000 Italians living with paralysis.

P: “Sorry… What music should I use?”

L: “These boots are made for walking”

P: Loredana can’t wait for someone else to do something about this situation and she is fighting every day with her blog “Cure Girls” and her page “Sruotiamoci” to create public awareness about supporting medical research in finding a cure for spinal cord injury.

L: “I think that a big part of the problem is that people don’t believe a cure is possible, but science is proving to us that it is possible also with recent studies from Switzerland proving that the spinal cord can be regenerated . So we only need to support this kind of research with more money and let people know that we can and must do it.”

P: Loredana is not a dreamer. Regeneration of the nervous tissue is no longer unrealistic.  In 2002 the European Parliament urged member States to step up funding for research for a cure for spinal cord injury also suggesting that funds could be raised from alcohol tax revenue and from traffic fines as spinal injuries are primarily caused by car accidents, but these recommendations are unheard of in Italy.

L: We shouldn’t come across as dreamers or as those who are being duped. We need to pay attention to this. We are making giant steps in every field and we must do it in this one because it is too important… Paralysis must become reversible”

P: After her accident, Loredana completed a degree in political science and took a Masters degree in local development. She has become a local councillor and now works for a transport company.

L: “I was able to go to college because my mother followed me in days, she came with me standing in the cold or in the classroom next to mine”

P: Like many others in the same condition, Loredana competes in her very own paralympics everyday, out of the spotlight, but she really doesn’t like the image of the paralympic athlete. 

L: “Disabled people are shown as superhuman, people that go beyond their limits but this fails to show the difficulties of being disabled and the difficulties of everyday life the one who has to fight with a catheter every day or with the loss of personal autonomy. This should make us think  and to ensure that those who organize the Paralympics maybe could try to support  research by the sponsors to the benefit of all and not the few”.

Original Italian Version: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-a307620e-95d0-4616-ac43-ed14ef2ee51c.html

Loredana on TG2: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-f259addc-88c5-4ebe-afed-014248397400-tg2.html

Loredana parla di Lesione Spinale a Tg2 – Costume e Società 

Cure for SCI Must Become Possible

La Cure Girl Loredana parla in TV a Rai 2. L’intervista è andata in onda il 4 marzo 2013 nella rubrica TG2 –  “Costume e Società”.

Obiettivo: Incrementare la consapevolezza delle persone, spiegando loro che una CURA per le lesioni spinali croniche è davvero qualcosa di vitale importanza.

Clicca http://www.youtube.com/watch?v=DTYFRmTh74Q per guardare il video.

Vedi anche Loredana al TG2 del 24/02/2013: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-f259addc-88c5-4ebe-afed-014248397400-tg2.html

Freedom…

Freedom to do what we want toAndremo oltre i limiti e confini liberi vedrai
faremo cose che non hai osato immaginare mai
andiamo…
Via senza più problemi andiamo
via senza regole
Godersi giorno dopo giorno
ogni momento che verrà
sarà diverso mai più tempo perso
aspettando che la vita va …

Raf  – Via  (2001) http://www.youtube.com/watch?v=Q_M4C3Sn-Zc

Crush Chronic Spinal Cord Injury!

Crush Chronic Spinal Cord Injury!…We are crushed and created
We are melted and made
We are broken and built up, in the very same way…

Caitlyn Smith – Crushed And Created (2007) 

http://www.youtube.com/watch?v=C-322USCiCw&feature=youtu.be 

WE WANT TO FEEL THE SENSE OF TOUCH

WE WANT TO FEEL THE SENSE OF TOUCHJust you try TYING YOUR HANDS AND LEGS UP! Now try to live just one day like this…The main consequence of spinal cord injury is permanent disability or loss of sensation and movement below the site of injury. This is our HELL!!!!

We need our hands and legs to be fully functioning again. We need this in order to regain our life back!

Cure Girls

 

 

VOGLIAMO PERCEPIRE IL TOCCO

WE WANT TO FEEL THE SENSE OF TOUCHLegatevi le mani e le gambe… Ora provate a vivere un solo intero giorno in questa condizione… La principale conseguenza delle lesioni al midollo spinale è un’invalidità permanente con perdita di sensibilità e di movimento al di sotto del sito della lesione. Questo è il nostro INFERNO!

Abbiamo bisogno delle nostre mani e delle nostre gambe per essere di nuovo completamente sani. Abbiamo bisogno di questo, per riconquistare la nostra vita!

Cure Girls