Cure Girl Lolly at the “Miami Project to Cure Paralysis”

Miami Project

The first time I ever visited Miami was before my injury. I went there on holiday and was partying hard and dancing on all the bars in South Beach, having the time of my life.
It’s kind of ironic that this was one of the first places I visited after my spinal cord injury in 2004. I visited the Brucker Biofeedback Centre for biofeedback treatment over a course of three weeks. I also was eager to visit The Miami Project to Cure Paralysis.

M.P. R. C.
The Miami Project is one of the biggest research centres in the world for spinal cord injury. They work closely with Spinal Research UK too.
It’s such an inspiring place for me to visit as there are so many positive people doing so much to find a cure for us.
I first became friends with Kim Anderson, a researcher at the Miami Project about five years ago. Kim too is a tetraplegic like me. She had her injury quite a few years ago and got so involved with SCI research that she studied it and now is one of the top researchers at the Miami Project. She is such an inspiration to me and a really lovely lady.

LOLLY AND KIM

Kim and I spoke about the progress of the clinical trials which are taking place now on acute injuries at the MP. She said that if these are successful they will eventually be carried out on chronics. All going well so far but both of us agree that we are very excited about other trials taking part on chronics.
She also mentioned that this is the most exciting time she has ever known with the work being done all over the world.

THERE REALLY IS HOPE… NOT ‘IF’ BUT WHEN.

Cure Girl Lolly

Cure Girl Sabrina: “We have a FREE soul in a CLOSED body”.

LIKE FOR SPINAL CORD INJURY CURE

SABRINA FERRIHi! I’m Sabrina from Brazil and I’m a Cure Girl. I met Loredana after a little “joke” on Facebook: I put a photo with other wheelchair girls seeking 50.000 “likes” to the cure of Chronic Spinal Cord Injury! It’s not a big deal, but after that I could meet some girls that share the same big dream that I have: The CURE for Chronic Spinal Cord Injury.

It was on may 2008. One day I fell off a swing that simulates surf in the air. I had always been an atlethic girl but in few seconds I became totally paralyzed shoulders down.

I work, do fisiotherapy  travel, but I need somebody 24h by my side, it’s unworthy and only I can feel this pain.

Since then, I have a dream: Find a CURE to SCI. It’s not just for me, It’s for the future, for everybody. We need to show to the world how important It is to find a CURE FOR PARALYSIS.

Just In Brazil we have 11.000 new injuries per year, people who lose their independence and their dignity.Sabrina's fisiotherapy

Nobody deserves to live in a wheelchair. The world needs to know about our reality, we are not heros or the strongest person that you know but we have a free soul in a closed body. We wanna change this and we are fighting for it.

The future for Spinal cord Injury is a cure.

“If you don’t live for anything you’ll die for nothing”.

SABRINA I'M A CURE GIRLCure Girl Sabrina

LOLLY’S SKYDIVE FOR SPINAL RESEARCH

FLYYesterday I did my skydive for Spinal Research UK and Back Up. I’m still pretty speechless over the whole experience. It was a very early start, waking up at 4.30 am. I went to catch the train at 7am along with with the support of my family and friends. Arrived at Sibson Airfield in Peterborough at 8am. Headed to the Jumpers Registration office and met all the lovely professional people who were working there doing the jumps.

My professional tandem jumper was a lovely guy called Chris. Immediately I felt that I could trust him, he has done over 8,000 jumps.

Lolly and Chris

I was the on the third plane to be taken up… the wait for this felt like a lifetime but was only a couple of hours.
Then.. that was it.. I WAS NEXT.. EEEEKKKK!!!!! I didn’t feel nervous just very excited as I’ve wanted to do this for many years now.. way before my injury. I was lifted in the plane by the team and that’s when I got strapped onto Chris.

GO LOLLY GO!The plane was going higher and higher.. three miles UP in the air around 15,000 ft. We got higher than the clouds and that is when I started feeling nervous. The shutter then opened and Chris and I sat on the edge with our legs hanging out of the plane.. then WOW out we went. What a feeling it was free falling through the sky and the clouds. Finally the parachute opened and we were gliding through the sky and looking down at the world which felt surreal.

LOLLY SKYDIVE CERTIFICATE

My first feeling of complete freedom since my injury. On landing it was great seeing the faces of my family and friends as they looked relieved I was ok. I raised just over £3,000 for Spinal Research and Back Up. Thank you to everyone who has sponsored and supported me. I really cannot put into words how grateful I am.

Lots of love from Cure Girl Lolly [the new complete adrenaline junkie!!!] x

Read more:

http://lollymack.com/

http://www.spinal-research.org/

Happy Easter from Cure Girls! Buona Pasqua dalle Cure Girls!

Happy Easter from Cure Girls! Buona Pasqua dalle Cure Girls!

Happy Easter from Cure Girls!  – Buona Pasqua dalle Cure Girls!

Chronic  Spinal  Cord  Injury Must Become Curable!

Cure Girls

FIGHT FOR A REVERSAL FOR PARALYSIS

To Walk Again...

“Hope has two beautiful daughters; their names are Anger and Courage. Anger at the way things are, and Courage to see that they do not remain as they are.”

Pablo Neruda

 

Loredana speaks out on Italian Television.

Cure for SCI Must Become Possible

Loredana speaks out on Italian Television. She wants to raise awareness and show people that a CURE for Chronic Spinal Cord Injury is of vital importance.

English version: http://www.youtube.com/watch?v=_p1fDUk-OHo&feature=youtu.be

Introduction: When disability is not a shame. The story we show you is a strong message to society that has to deal with a problem never completely solved. By Piergiorgio Giacovazzo

Loredana:“Please don’t make a sad piece and don’t use a sad music.”

“’I’m not angry, I just feel like I want to live”.

Piergiorgio: Loredana is a woman living in Galliavola (Pavia). She was 17 when she became paraplegic  from a car accident.

L: “You miss your independent life your real life the life you were dreaming of”

P: Like Loredana, about 1500 people suffer from spinal cord injury and become paralysed every year. According to the ministry of health, there are currently 80,000 Italians living with paralysis.

P: “Sorry… What music should I use?”

L: “These boots are made for walking”

P: Loredana can’t wait for someone else to do something about this situation and she is fighting every day with her blog “Cure Girls” and her page “Sruotiamoci” to create public awareness about supporting medical research in finding a cure for spinal cord injury.

L: “I think that a big part of the problem is that people don’t believe a cure is possible, but science is proving to us that it is possible also with recent studies from Switzerland proving that the spinal cord can be regenerated . So we only need to support this kind of research with more money and let people know that we can and must do it.”

P: Loredana is not a dreamer. Regeneration of the nervous tissue is no longer unrealistic.  In 2002 the European Parliament urged member States to step up funding for research for a cure for spinal cord injury also suggesting that funds could be raised from alcohol tax revenue and from traffic fines as spinal injuries are primarily caused by car accidents, but these recommendations are unheard of in Italy.

L: We shouldn’t come across as dreamers or as those who are being duped. We need to pay attention to this. We are making giant steps in every field and we must do it in this one because it is too important… Paralysis must become reversible”

P: After her accident, Loredana completed a degree in political science and took a Masters degree in local development. She has become a local councillor and now works for a transport company.

L: “I was able to go to college because my mother followed me in days, she came with me standing in the cold or in the classroom next to mine”

P: Like many others in the same condition, Loredana competes in her very own paralympics everyday, out of the spotlight, but she really doesn’t like the image of the paralympic athlete. 

L: “Disabled people are shown as superhuman, people that go beyond their limits but this fails to show the difficulties of being disabled and the difficulties of everyday life the one who has to fight with a catheter every day or with the loss of personal autonomy. This should make us think  and to ensure that those who organize the Paralympics maybe could try to support  research by the sponsors to the benefit of all and not the few”.

Original Italian Version: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-a307620e-95d0-4616-ac43-ed14ef2ee51c.html

Loredana on TG2: http://www.rai.tv/dl/RaiTV/programmi/media/ContentItem-f259addc-88c5-4ebe-afed-014248397400-tg2.html

Happiness Is Walking Barefoot Through Grass

We Want to Walk Again

“HAPPINES IS WALKING BAREFOOT THROUGH GRASS”.

Happiness Is Walking Barefoot Through Grass

Charlie Brown, in Charles M. Schulz, Peanuts, 1950 

 

HAPPINESS IS HOLD IN YOUR HANDS A CUP OF HOT MILK

HAPPINESS IS HOLD IN YOUR HANDS A CUP OF HOT MILK

Barbara BucciMy name is Barbara, I’m 36 years old and I’m quadriplegic since 1987, when, following a fall from my swing, I suffered a cervical spinal cord injury that has affected me the full use of my arms and legs. I consider myself a “Cure Girl” because I wish with all my heart that a cure will be found soon for all types of spinal cord injury and for all levels. In particular, for all those injuries that cause the total and/or partial loss of autonomy in taking care of themselves.

The severity of my injury and its high level (C4-C5) resulted in a condition of dependence to perform the actions necessary to daily life, causing great inconvenience not only to me. Being dependent on others is one of the worst things that a human being can experience. All this is aggravated by the fact that, in most cases, family has to take the whole load of assistance. Therefore, only permanent cure to recover at least all those movements that allow complete autonomy is the only way to change things; every other remedy is only a palliative.

The focus on medical research to cure spinal cord injuries is very lacking, especially in Italy, and this is because there is a very little information on the consequences which this type of trauma involves… as if paralysis itself is not enough to require the need of a cure!

Barbara BucciThanks to Internet we can spread our voice and let everyone know what is actually a spinal injury, so everyone will realize how important it is to always keep the spotlight on medical research, as it occurs with many other disabilities.

“Happiness is… feel the hair through  your fingers… take a child in your arms… clapping at a concert… hold in your hands a cup of hot milk… walking barefoot on wet sand…

It does not take much to be happy.”

Our Cure Girl Barbara

Walking Towards a Cure

Walking Towards a Cure

A good news for Chronic Spinal Cord Injury (SCI) cure is coming from Stem Cells Inc.

“StemCells, Inc.(Nasdaq:STEM) today announced that the twelve month data from the first patient cohort in the Company’s Phase I/II clinical trial of its proprietary HuCNS-SC® product candidate (purified human neural stem cells) for chronic spinal cord injury continued to demonstrate a favorable safety profile, and showed that the considerable gains in sensory function observed in two of the three patients at the six-month assessment have persisted.”(1)

This is a first step but it is showing all of us that our dreams for a cure may become a reality!

“While we need to be cautious when interpreting data from a small, uncontrolled trial, to our knowledge, this is the first time a patient with a complete spinal cord injury has been converted to a patient with an incomplete injury following transplantation of neural stem cells. We are encouraged that the cells appear to convey clinical benefit in such severely injured patients.” (2)

As we can see, a cure is possible and that is why we, Cure Girls, are strongly fighting for it!
 
Our Cure Girl Arcangela
 
(1) StemCells, Inc. Announces First Patient Cohort Completes Spinal Cord Injury Trial – Gains in Sensory Function Persist 12 Months After Stem Cell Transplant: http://investor.stemcellsinc.com/phoenix.zhtml?c=86230&p=irol-newsArticle&ID=1784054&highlight

Happy Valentines Day from the Cure Girls – Buon San Valentino dalle Cure Girls

WE NEED TO FEEL  THE SENSE OF TOUCH “I still feel your touch in my dreams. Forgive me my weakness, but I don’t know why. Without you it’s hard to survive.”

Cascada – Everytime We Touch (2006) http://www.youtube.com/watch?v=gWB-J0EEFac