…We are crushed and created
We are melted and made
We are broken and built up, in the very same way…
Caitlyn Smith – Crushed And Created (2007)
Archivi tag: JAIL
WE WANT TO FEEL THE SENSE OF TOUCH
Just you try TYING YOUR HANDS AND LEGS UP! Now try to live just one day like this…The main consequence of spinal cord injury is permanent disability or loss of sensation and movement below the site of injury. This is our HELL!!!!
We need our hands and legs to be fully functioning again. We need this in order to regain our life back!
Cure Girls
VOGLIAMO PERCEPIRE IL TOCCO
Legatevi le mani e le gambe… Ora provate a vivere un solo intero giorno in questa condizione… La principale conseguenza delle lesioni al midollo spinale è un’invalidità permanente con perdita di sensibilità e di movimento al di sotto del sito della lesione. Questo è il nostro INFERNO!
Abbiamo bisogno delle nostre mani e delle nostre gambe per essere di nuovo completamente sani. Abbiamo bisogno di questo, per riconquistare la nostra vita!
Cure Girls
SIAMO NATI PER CAMMINARE NON PER “RUOTARE”
“Questi stivali sono fatti per camminare, ed è proprio quello che faranno, uno di questi giorni questi stivali cammineranno su di te.”
Nancy Sinatra – These Boots Are Made For Walking (1966)
http://www.youtube.com/watch?v=yRkovnss7sg
WE WERE BORN TO WALK NOT TO ROLL
“These boots are made for walking, and that’s just what they’ll do one of these days these boots are gonna walk all over you.”
Nancy Sinatra – These Boots Are Made For Walking (1966)
http://www.youtube.com/watch?v=yRkovnss7sg
LE CURE GIRLS SCRIVONO A BABBO NATALE
LETTERS TO SANTA FROM CURE GIRLS
Caro Babbo Natale,
Noi siamo state estremamente buone quest’anno, quindi per favore cerca di portarci una CURA PER LA LESIONE SPINALE CRONICA 😉
BUON NATALE E FELICE ANNO NUOVO!
CURE GIRLS
LETTERA A BABBO NATALE DELLA CURE GIRL ARCANGELA:
https://curegirls.wordpress.com/?attachment_id=653
LETTERA A BABBO NATALE DELLA CURE GIRL LOLLY:
https://curegirls.wordpress.com/?attachment_id=654
LETTERA A BABBO NATALE DELLA CURE GIRL LOREDANA:
https://curegirls.wordpress.com/?attachment_id=657
LETTERA DELLA CURE GIRL MARINA A BABBO NATALE
https://curegirls.wordpress.com/?attachment_id=674
LETTERA A BABBO NATALE DELLA CURE GIRL REBECCA:
https://curegirls.wordpress.com/?attachment_id=655
LETTERA DELLA CURE GIRL RUTH A BABBO NATALE:
https://curegirls.wordpress.com/?attachment_id=668
BUON NATALE A TUTTI!
Ruth Purves: A Cure Girl Warrior
Freedom to move is one of our most basic human rights – La libertà di muoversi è uno dei principali e basilari diritti umani
Hello, I’m Ruth and I’m most definitely a Cure Girl, not a ‘Push Girl’. In 2009, I broke
my neck in an accident and have been paralysed from the chest down since. I cannot balance as I have no trunk muscles and have no use of my hands or fingers. I am dependent on others for almost all aspects of my survival.
Prior to my accident, I was working in Afghanistan as a humanitarian aid worker. I have a master’s degree in Disaster Management and have worked in conflict and disaster zones all over the world. My career was demanding, challenging and occasionally rewarding.
When not working, I enjoyed travelling and exploring new cultures. I was and still am a positive and energetic person. However, living trapped in a body that doesn’t work is incredibly frustrating and sad.
Like everyone else who becomes paralysed, I did not choose this life. The only choice I have left is a simple one: choose to accept being paralysed or choose to do something about it. I’m choosing to do something about it.
We are at an exciting point in human history where regenerative medicine is about to become a reality. Pre-clinical research and clinical trials and are taking place like never before. However, to ensure that chronic spinal cord injury becomes curable, there’s still a lot to do. The more people who come forward to support a cure, the better. We need a collective voice saying loud and clear that paralysis is not acceptable.
Freedom to move is one of our most basic human rights and to be paralysed is to be alienated from one’s most fundamental sense of self.
Together with a dedicated team of international cure advocates, I campaign for a cure for chronic SCI. We support and question scientists, lobby organisations and ensure that chronic SCI is always on the agenda. I also organise local fundraising initiatives to support clinical trials that are already underway.
As well as campaigning for a cure, I also undertake an intensive exercise regime to
ensure that when a cure therapy becomes available, my body is ready. It’s an unrewarding task and it consumes most of my energy but I’m determined to recover and believe that a healthy body will be easier to cure.
I want my life back. I want to be well; to be free; to move. I’m not a Push Girl; I’m a Cure Girl Warrior.
Ruth Purves
Ruth Purves: Una Cure Girl Guerriera!
Freedom to move is one of our most basic human rights – La libertà di muoversi è uno dei principali e basilari diritti umani
Ciao, mi chiamo Ruth e sono sicuramente una Cure Girl, non una Push Girl. Nel 2009, mi sono rotta il collo in un incidente e sono rimasta paralizzata dal torace in giù. Ho perso la capacità di tenermi in equilibrio perché non controllo i muscoli del tronco e ho anche perso l’uso delle mani e delle dita. Sono dipendente dagli altri per quasi tutti gli aspetti della mia sopravvivenza.
Prima del mio incidente, ho lavorato in Afghanistan come operatore umanitario. Ho conseguito un master in gestione delle catastrofi e ho lavorato nelle zone di conflitto di tutto il mondo. La mia carriera è stata impegnativa, stimolante e di tanto in tanto anche gratificante.
Quando non lavoravo, mi piaceva viaggiare e conoscere nuove culture. Io ero e sono ancora una persona positiva ed energica. Tuttavia, vivere intrappolata in un corpo che non funziona è incredibilmente frustrante e triste.
Come tutti gli altri, che hanno subito una paralisi, non ho scelto questa vita. L’unica possibilità di scelta che mi è rimasta da prendere è semplicemente quella di accettare di essere paralizzata o scegliere invece di fare qualcosa a riguardo. Ho scelto di fare qualcosa a riguardo.
Siamo ad un punto interessante della storia umana in cui la medicina rigenerativa sta per diventare una realtà. Ricerca pre-clinica e studi clinici sono in corso come mai successo prima. Tuttavia, per garantire che la lesione del midollo spinale cronica diventi curabile, c’è ancora molto da fare. Più persone si fanno avanti per sostenere una cura, meglio è. Abbiamo bisogno di una voce collettiva per dire forte e chiaro che la paralisi non è accettabile.
La libertà di muoversi è uno dei principali e basilari diritti umani e l’essere paralizzato significa perdere una parte importantissima della propria identità.
Insieme a un team internazionale di attivisti, sostengo una campagna per la cura della lesione spinale cronica. Noi supportiamo i ricercatori e le organizzazioni per garantire che l’attenzione sulla lesione cronica sia sempre all’ordine del giorno. Ho anche organizzato iniziative locali di raccolta fondi per sostenere studi clinici che sono già in corso.
Inoltre, seguo un regime di fisioterapia intensivo con lo scopo di garantirmi un corpo “pronto” per quando sarà disponibile una cura. E’ un compito ingrato e consuma la maggior parte delle mie energie, ma sono determinata perché credo che un corpo “sano” sarà più facile da curare.
Voglio indietro la mia vita. Voglio stare bene, essere libera di muovermi. Io non sono una Push Girl; Io sono una Cure Girl Guerriera!
Ruth Purves
Lolly Mack: Skydive plans for ex-glamour model paralysed by clubber
Saturday, November 24, 2012
Skydive plans for ex-glamour model paralysed by clubber
by Syma Mohammed
A former glamour model who was left completely paralysed after a tragic accident will be skydiving for charity in March.
Lorraine Mack, 38, of De Beauvoir Town, was left immobile from the neck down after a man who had taken ecstasy and alcohol fell on her head from a balcony during a night out with friends in central London in 2004.
The brave woman will be jumping from the sky to raise money for a spinal research.
[ Lolly’s Skidive for Spinal Research: http://www.justgiving.com/Lolly-Mack ]
She said: “I’m trying to raise as much money as possible for spinal research. There are a lot of positive things happening in terms of research and clinical trials.
“I’m very positive that in time a cure will be found. My goal is to get on my feet and get my independence back.”
Paralysis
Prior to the accident, her career was taking off and she had appeared in The Sun, News of the World, FHM magazine and MTV. She recounts the night that changed her life, saying: “We went to a nightclub and a man fell from a balcony above me.
“He was 17 stone and landed on my head. My spinal cord was compressed and that’s what caused the complete paralysis.”
She spent 10 months in hospital, but said there was a lack of support once she left hospital.
Ms Mack continued: “My main thing was to stay fit and healthy. Exercise was a big part of my life. My family all made a commitment to fight this and try everything to get me on my feet again.”
With help from her family she bought a functional electrical stimulation (FES) bike, standing frame and the power plate, which has helped transform her life. She said: “The standing frame improves circulation, bone density and breathing. The power plate is a vibrating plate and helps to improve blood circulation and massages the limbs. The FES bike works out my arms and legs and prevents muscle wastage.”
Since her accident, she has regained some movement in her arms, and some feelings in her toes through using this equipment.
She added: Now I’ve got the use of my arms, I can do things like go on Facebook. I can do my make-up.
“I can feel my toe on my right foot. They are small things but they are big improvements.”
Positive
She said a positive attitude helped get her through, saying: “I’ve never been a negative person. I look forward. I have such a good support network.
“The only positive thing that has come out of this is the number of courageous people I have met. I have a Facebook page https://www.facebook.com/Cureforsci?fref=ts with 5,000 people from around the world who have different injuries.
“I try to give them advice. Even if I’m helping one person, then that’s worth it.”
Man Walked on the Moon, We Just Want to Walk on The Earth
Man Walked on the Moon, We Just Want to Walk on The Earth
“2001. I was 32 years old…Many dreams, goals to reach, interests…And then the car accident… A Spinal Cord Injury which changed my life completely.
As a paraplegic I have been taught to face with my “new body”, to take care of it, to be the most possible independent women but already 11 years have past. To be able to do things differently in a wheelchair is not my greatest ambition.
I’m a Cure Girl! My goal is to Fight The Paralysis!
Arcangela: “I’m a Cure Girl”
Spinal cord injury research for a cure is always going on and what one day we thought impossible, we now know will be possible.
The spinal cord injury devastates our life. I think nobody will have to suffer a spinal cord injury anymore and I will fight to one day have a cure for chronic spinal cord injury.
Arcangela Stefanetti
CURE GIRLS 