Just as we change, so do the cities. Twenty five years later I returned to the Queen’s land. Since I was last here in my early teens (and I still walked), it was a different city for me.
London was an incredible experience for its receptivity, accessibility and intensity. Receptivity because I could feel, since my arrival, how the bonds have grown stronger even at a distance — Lolly, her brothers Tony and Gary and their mother Maureen welcomed me as part of the family we really are. The accessibility made it possible for us to fulfill the really intense schedule we had between pubs, Paris and occasional tourism.
Our first appointment was meeting the incredible staff at Spinal Research’s office and formalise the donation of £1,500 that was collected at Stand Up for a Cure — a party which me and Lolly, representing the Cure Girls, organized in Brazil. Our next step was a visit to the lab of Dr. Liz Bradbury at Kings College, where she talked about her fifteen years of research and search for the healing of spinal cord injuries. We got to see incredible things which she uses in her studies. In the afternoon we went to the UCL lab which outlines another line of research, seeking to treat chronic injuries in humans and is funded by the Nicholls Spinal Injury Foundation. We spoke to Charlotte who is the Finance Manager of NSIF and also the researcher Professor Ying Li and the team. We’re looking forward for the good news in the years to come! On that day I personally met Loredana, my “cure girl sister” from Italy. Hopefully, soon everyone will know even more about the projects and hopes from seven girls around the world fighting for the healing of spinal cord injuries. May the possibility of truly effective treatments for the spinal cord injury arise from this meeting. I’m still dreaming of watching a Rolling Stones concert in Hyde Park — and for this to happen, both Mick & Co. and Cure Girls will need science walking by our sides. “You can’t always get what you want, but if you try sometimes…”
We have nothing against robotics and compensatory devices as they can be a useful complementary approaches. However, the attention and funding they get seems to be exaggerated when considering their potential results, particularly in comparison to the potential results of regenerative therapies. Yes, robots are exiting; when you see them you immediately understand what they do. Regenerative research is more complex, more obscure and maybe longer term. But it is the kind of serious and total investment we need if we really want to solve the problem. Regenerative medicine has the potential to create a future without paralysis. Robotics can only compensate for a fraction of the problems experienced by people with spinal cord injury and as many paralysed people know, paralysis involves a lot more than just not walking.
The BBC has reported on compensatory devices like wearable robotic suits, but has not reported on the real cure.
We’re asking for fair coverage of regenerative medicine. Click on the link below and then click to send your email.
Non abbiamo nulla contro la robotica, può essere un utile approccio complementare, ma l’attenzione e il finanziamento dedicatogli sembrano davvero essere esagerati se si considerano le potenzialità dei robot, rispetto a quelle delle terapie rigenerative.
Quindi sì, i robot stanno avanzando. Quando li vedi capisci subito quello che fanno. La ricerca rigenerativa invece è più complessa, più oscura e forse più “a lungo termine”. Ma è l’unico tipo di investimento serio di cui abbiamo bisogno se vogliamo davvero risolvere il problema!
La medicina rigenerativa ha il potenziale di creare un futuro senza paralisi. La robotica invece può compensare solo una piccola parte dei problemi incontrati dalle persone con lesione del midollo spinale e, come purtroppo molte persone paralizzate sanno, lesione spinale significa molto di più del mero non camminare ” .
La BBC ha puntato l’attenzione su dispositivi compensativi come tute robotiche indossabili, ma non ha parlato di vera cura .
Vogliamo chiedergli di destinare la stessa attenzione alla medicina rigenerativa!
Se vuoi aiutarci, clicca qui, compila il form e invia la tua mail alla BBC!