Cure Girl Lolly’s Interview on BBC Radio London

 

Cure Girl Lolly

On Wednesday 13th January I was absolutely delighted to be invited along to BBC Radio London to have an interview with the brilliant Eddie Nestor on his Drivetime Show.
Eddie talks about serious topics/issues and peoples views in London and I was nervous but excited to speak about my story, latest fundraiser and the Cure Girls mission “live” on the radio!
Dr Mark Bacon, Executive Clinical Director of Spinal Research also accompanied me and spoke about the fact that the charity isn’t government funded, the statistics of people living with a spinal cord injury in the UK and also the complex issue of a cure.

Lolly bbc radio londra
I mentioned my latest challenge which is a 285 mile virtual London to Paris cycle on my FES bike to raise as much money as I can for Spinal Research. This was a great opportunity and I’ve had lots of messages of support from lovely people and some donations which have been amazing.
You can still listen to the interview here: http://www.bbc.co.uk/programmes/p03cnh9n#play and using the slider go to 2 hours and 6 minutes.

Cure Girl Lolly.

You can still sponsor me, I’m on Day 5 of my challenge and I’ve cycled 115 miles so far. Please go to www.justgiving.com/Lorraine-Mack5 all donations could potentially get people out of wheelchairs!

Thanks so much!

Happy Holidays from the Cure Girls

copertina natalizia_Fotor

Merry Christmas and Happy New Year from the Cure Girls – On a Mission To Reverse Paralysis Buon Natale a tutti, Joyeux Noël, 圣诞快乐, Boas Festas, Feliz Navidad, Zalig Kerstfeest, Frohliche Weihnachten, Milad Mubarak, Merii Kurisumasu!

Charity Race for Marina Romoli Onlus

 

pilotiFor its 73rd edition, EICMA has decided to dedicate the annual Charity Race to the charity Marina Romoli Onlus (MRO). The race, which took place on Sunday, November 22nd in the MotoLive arena, consisted of a relay race with teams competing in different categories (Flat Track, Motocross, Quad). The prize money of 10,000 euros went to MRO. The association was created in 2011, after the road crash that has dramatically changed the life of the promising cyclist Marina Romoli, with the aim of supporting research to find a cure for chronic spinal cord injury and to help financially young athletes who sustained disabling injuries due to accidents during sports activities. EICMA every edition chooses a partner to start a charity activity with, this year they decided to join the MRO since both organizations share a strong commitment to promote road safety for two wheels users.

“We are happy and proud that EICMA and the pilots have chosen to support personally our cause. Many thanks to all the riders and to all the other great people who are always on our side because they believe in our mission. Indeed in recent years the champions of various sports have never failed to lend their support by helping us to raise awareness and funds for medical research to find a cure for paralysis. Their strong support help us fighting every day to make our dream come true, so that paralysis will soon become just a bad memory, ” said Marina Romoli, president of MRO and meber of the Cure Girls.

“I felt a strong emotion watching them riding to support with great passion our mission. Their contribution will help finding a cure for paralysis. Unfortunately our battle is hard, but all the great support we have had so far give us hope that we can really make a cure happen. I sincerely thank all who have supported us. Thank you … Thank you … Thank you!!!!!” Said Loredana Longo Vice President of Marina Romoli Onlus and member of Cure Girls.

Photo Galleries

Eicma Charity Race for MRO

MRO at Eicma

Video

About Eicma

The limited company EICMA is the marketing tool of Confindustria ANCMA, the National Association of Bicycles Motorcycles and Accessories, through which Italy consolidates its role on the international scene. EICMA organizes the International Motorcycle Exhibition , in Milan: is the only platform in the world capable of illustrating all the different aspects of the two-wheeler world. It is amply confirmed as the world event that attracts most visitors, trade and press so much so as to guarantee a higher visibility than any other event of this sector. In 2014, EICMA celebrated its first 100 years. The Exhibition and the city of Milan, together with Italy, boosts a vision of present and future which confers prestige and shows two-wheel vehicles as the protagonists of a new concept of mobility, as well as continuing to inspire a strong deeply-rooted passion. This mix of elements adds up to a trade exhibition that fulfils both B2B and B2C objectives, enabling producers to reach a wide and highly diversified target. An important forum and meeting point, capable of presenting themes that go well beyond those strictly relating to two-wheelers, and focused on the requirements expressed by society as a whole, even through contaminations with other sectors. http://www.eicma.it/en/

Cure Girls 3rd Birthday Week- Loredana’s Story

 Lory schienaI don’t like to celebrate birthdays because they remind me that time passes and yet there is still no cure for paralysis. My accident occurred in 2001 meaning that I have been paralysed for 14 years. I founded the Cure Girls because I thought that many women suffering just as I do could fight together and raise awareness about the serious problem that is paralysis caused by spinal cord injury. Each of the eight Cure Girls is individual and each has a different way of life. However, we all share the same goal: to return to an independent and autonomous life. The Cure Girls believe that only a cure that makes paralysis reversible will enable us to lead fulfilling lives. In these three years we have undertaken outreach programmes and fundraising. We have met with researchers and have been studying numerous lines of research. However, it is still not enough and our battle will only be over when paralysis becomes curable. We no longer want to live restricted lives, dependent on others to care for us. We no longer want paralysis to devastate our dreams and the dreams of other people. We want a cure for paralysis and only when we have reached our goal we can really celebrate! Thanks again to all of you who support us in this struggle.
Cure Girl Loredana

Cure Girls 3rd Birthday Week- Ruth’s Story

ruthWhat can I say that hasn’t already been said by the other fantastic Cure Girls? Paralysis has ruined our lives and those of our loved ones. Healthy, vibrant young lives transformed in an instant into lives of pain, illness and dependency. I joined the Cure Girls because the group is a beacon of hope, humour and courage in this bleak landscape. Working with the Cure Girls has enabled me to challenge the popularly held notion that disability and paralysis are empowering life choices. For me, and I think the other Cure Girls will agree, paralysis has been and continues to be a harrowing ordeal. There is no narrative of ‘triumph over adversity’ here, only a deep desire to recover function. And this is why the work of the Cure Girls is so crucial and important: we create a sense of urgency. Our message is simple and our determination knows no bounds: Chronic spinal cord injury must become curable.

Cure Girl Ruth.

Cure Girls 3rd Birthday Week- Arcangela’s Story

nuova arcy3 years of the Cure Girls….so proud to be part of this group! We are all women with a spinal cord injury, from different countries, with different stories but the same dream: to have our life back! Thanks to social networking, I found the Cure Girls and wanted to be part of in making our dream a reality. We decided to take part and/or create funding events, go to visit laboratories, and inform people about the realities of living with paralysis. The Cure Girls have been busy … we didn’t want just sit and wait! Before my accident I was happy with my life, it was a normal life but a life where I could decide what to do with it without limits. Everything was exciting….. After the accident everything changed…..In addition to the main problem, the enormous quantity of phisical problems, I have also been forced to face life with many restrictions, as I am no longer free to do what I wanted when and how I wanted……

Arcangela: "I sono una Cure Girl"

Arcangela: “I sono una Cure Girl”

No, this is not a life….Nobody should have to suffer the way paralysed people do (expecially those with high injuries). I want a CURE for chronic spinal cord injury! Only this way will both people already living with a spinal cord injury and the newly injured be able to recover from paralysis and rebuild their lives!

Cure Girl Arcangela

Cure Girls 3rd Birthday Week- Rebecca’s Story

I joined the Cure Girls because I wanted to raise awareness of the need to find a Cure for Spinal Cord Injury, living life in a chair isn’t fun. We need to raise funds and spread the word and also raise as much money as we can to put towards the research to make this cure possible.
I am an identical twin, before my accident I spent all my life with my sister, rebecca 4we did everything together, the same subjects at school, same hobbies and friends and we went off to agricultural college together to learn to teach horse riding and equestrian business management. After qualifying we went on to riding hors es for other people and grooming. It was the best life, we had our own horses too, so we’d be looking after our own, then going off to work and having our own amount of horses to take care of and ride. I loved my job, my friends and all the nights out we all had. Being able to stay out all night, whenever we wanted Hunting, Eventing, Polo and young farmer’s life couldn’t be better. This is what we’d dreamed of. At the age of 22 during a Polo match a horse riding accident so horrific changed my life, split my sister and I in two and ripped me out of the world of horses, my whole life torn to shreds.A spinal cord injury ruins your life, takes the fun out of everything, tears you away from your passions whatever they may be and thrusts you into a horrible life of sitting down, catheters, urine infections, bladder and bowel’s that no longer work, along with your legs, and a life of people talking to you like you’re a child. It’s HELL!!!Rebecca a cavalloWe need a cure so that no more people have to go through what we are living through and ensure people can live the lives they dream of. People need to be aware of the different things we all have to go through, this isn’t just so we can all walk and feel again, there are so many awful things we have to cope with behind closed doors and also the mental torture we all have to try to battle with each day.I don’t want my worst enemy to have a spinal cord injury; it really is hell on earth.Being part of the Cure Girls has given me a purpose, and some loyal friends along the way. We are in many ways like sisters all joined together by life changing events. We are from all around the world and all have different languages but we are all passionate about finding a Cure for Spinal Cord Injury. We do not want anyone to go through what we have to go through daily.If we have to battle for years that is what we’ll do, but we’ll do it together and always remain focused on the Cure.

“Cure Girl Rebecca”

Cure Girls 3rd Birthday Week- Sabrina’s Story

SabrinaI became a Cure Girl after we placed a picture with my friends from Brazil from march 2013, on facebook asking for likes to find a cure to spinal cord injury. I had almost 5000 shares and this was when Loredana saw me we then talked on skype. I then became a member of the Cure Girls team. It was amazing finding girls who think like me, that have suffered the same consequences of spinal cord injury. Our goal is find a cure to paralysis.  I am a kind of free soul. Before my injury I enjoyed spending my time doing sports. I loved my weekends, doing beach running and surfing. Then on may 2008 day I fell off a swing that simulates surf in the air. I was such an athletic girl and within seconds I’m total paralyzed from the shoulders down. We have this mission to find a cure and I will fight for a cure everyday of my life. To be able to take away the dependency on others would be one of the greatest achievements and you can have would bring great happiness to us all. In October 2014, fellow Cure Girl Lolly came to Brazil to visit me and we organized a party to raise money for research. It was a huge success and received a lot of media support. Every year I also support WFLWR (Wings for Life World Run), it is a simultaneously run event around the world and raises money for a cure and where 100% of the funds are given to research.

Join us in this mission! Follow us and support us to find a cure for spinal cord injury. Let’s walk again!

Cure Girl Sabrina

Cure Girls 3rd Birthday Week- Marina’s Story

MarinaI’m Marina Romoli, an ex-professional cyclist and in June 2010 I became paralyzed after an accident during training. I lost my ability to cycle and also all of my professional sporting dreams.

This terrible event, however, did not make me lose the will to live. I decided to do something useful both for myself and for others living with SCI: I decided to dedicate myself to the utmost to find a cure for paralysis. To this end in 2011 my cycling friends and I founded the ‘Marina Romoli onlus’ with the aim of supporting young paralysed athletes who suffer the catastrophic consequences of paralysis. In 2012 I became the president of the ‘Marina Romoli onlus’ and I began to organize events and undertake fundraising for SCI research (www.marinaromolionlus.org).

In this period I met Loredana Longo, the founder of the Cure Girls. She spoke to me about this international coalition of paraysed women who were fighting for a cure for paralysis. I was immediately exited and joined the Cure Girls. The central message of the Cure Girls is very important to me: the only way for paralysed people to be really happy and lead independent lives is to find a cure for paralysis. I strongly believe this and am therefore a real Cure Girl.

Cure Girl Marina

Cure Girls 3rd Birthday Week- Barbara’s Story

barbaraCG 3 bday
I joined the Cure Girls in February 2013 after a difficult period in my life… One of the worst consequences of spinal cord injury occurred and I had a pressure sore, spending the whole of 2012 in bed. The situation made me realise how unbearable it is to depend on others for absolutely everything you need. I sadly realise that only a cure could let me live a life with no fear. So I decided to throw myself into raising awareness of the severe consequences of spinal cord injury and the urgency of finding a cure as soon as possible. After being a quadriplegic for 28 years being Cure Girl was the only choice I could make.
Cure Girl  Barbara