On 9 January, the president of the Italian Paralymic Committee, Mr. Luca Pancalli stated on RAI’s (Italian Broadcasting Corporation’s) TG1 that:
“If I could live life again I would include my accident (which left me a quadriplegic). Happiness is wanting exactly what you already have.”
In response to this insulting statement made by a public personality, Ms. Loredana Longo, spokesperson for the Sruotiamoci CURE paralysis movement wrote a letter to Mr. Pancalli condemning his statement as counterproductive to cure research as it falsifies the daily suffering of those living with spinal cord injury.
Under the banner “Chronic spinal cord injury is a form of torture”, Italian cure activists are demanding that RAI give them the right of reply to show the reality of spinal cord injury.
In Ms. Longo’s own words, “To show that aside from living life from a wheelchair, we are forced to urinate from a catheter, use invasive methods to empty our bowels, and are subject to the effects of liver damaging drugs.”
In just two short days Italians have sent over 150 emails to RAI to back up their demands for a right of reply.
You can help them by doing the same.
Please send your email by completing the below fields.
THE SPINAL INJURY IS A FORM OF TORTURE… SIGN AND FIGHT WITH US FOR THE CURE!
CURE GIRLS 
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Happiness isn’t wanting paralysis. It certainly is not found in any world wide dictionary. I challenge you to live a full week in a manual or motorized wheelchair like myself. But …have the seat belt on so it somewhat mimics our lack of truck control . I can’t use my left arm or hand at all. My sci is at
C-4. My right I use only a thumb. Ride along bumpy surfaces see how your spine is shook up and imagine drink…anything you have on your lap falling off and you can’t reach it and no one helps. Imagine a stray dog chasing you as you go by. Imagine not able to lay curled up so your legs don’t lock up or lay on your stomache. Try not being able to flip back over from your side or rise in bed. Imagine when you try to risk a task and you fall and not found for days. Imagine meds we must take to control neurons out of wack.. called spasms and clonis. These meds lasting 3 hours but take every 4 hours because they damage our liver and constipate us so bad impaction puts us in the hospital . Pain or bowel. .bladder infection ..stubbed or ingrown toe nail causes a stimuli to our brain because the signals cant go beyond our SCI injury level . This can kill us. Or not being able to sense temperature and overheat in seconds in a deathly outcome if not cooled. Imagine never getting to play pat a cake with your grand child or walking them holding their hand. Imagine when family and friends and mates leave once it all becomes too much for their understanding…because they can’t fix us . Its called the honeymoon period..most leave after 2 mths. Imagine having other conditions like heart.. cancer to battle but paralysis becomes evil from all it is. Imagine waking and finding what once you found in happiness can’t be ever again. Our lives are different. Not dead yet given respect and consideration as thou we were. The torture is looking in your eyes when you realise how ignorant of a statement was made by a human. With a heart ?
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